Jaxson Update | 11.09.18
Occupational Therapy:
Jaxson had his Occupational Therapy consult a couple weeks ago. The therapist recommended one hour therapy sessions twice a week, which looks like it'll be on Monday and Thursday mornings. They will be focusing on mostly Sensory (SPD) with a side of Feeding and Fine Motor skills (as mentioned before). They want to strengthen his pincer grip as well.
Physical Therapy:
Jaxson had his Physical Therapy consult last Tuesday and the therapist was pleased with what she saw. She mentioned that he was at age for gross motor skills but was concerned with his feet. She felt that his ankles were extremely relaxed or loose. She recommended we see an Orthopedist to be fitted for AFO (ankle foot orthosis) to correct his feet and hopefully help with his balance. She wants to see him once a week for a few months to work on core and leg strength.Other Therapies/Referrals:
We had to post-pone his ENT appointment because the referral fell through the cracks some how. The office got the referral from our pediatrician but the insurance didn't. We finally received the boy's medical records from the Naval Hospital in Pensacola. The lady handling their records here will be putting their information on a disc for us. I do have most of Jaxson's referrals and genetic notes but I do not have the rest.
We are waiting to get in with the Neurologist, Sleep Center, Gastroenterologist, Ophthalmologist, and Genetics over in Raleigh.
Communication:
Jaxson has been babbling more and more. Mostly it sounds as if he's saying JJ's name, it's so sweet. He usually says it the most when JJ is at school, I know he misses him a lot during the day. He was so use to JJ being home with us but now he is gone from 7:30 to 4:30 (such a long day!). He also says something that sounds like "da-da," I guess this momma is chopped liver.
The Speech Therapist from CDSA (early steps) has me being more hands on with Jaxson as far as signs. However, when I ask him to do please, all done, and eat he does the sign for "more" or claps. They will be coming by on Friday next week to see how he's responding to me teaching him.
Overall, he's doing well!
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Labels: Advocate, DYRK1A, Occupational Therapy, Physical Therapy, Speech Therapy
3 Comments:
It sounds like he's making great progress! I'm glad they noticed his ankles and have a plan to correct that. It will make him steady on his feet. Keep doing what you do. You're the best!
It is wonderful to hear he is making progress. You are doing great Mama!
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