Jaxson Update | 11.09.18

Occupational Therapy: 

Jaxson had his Occupational Therapy consult a couple weeks ago. The therapist recommended one hour therapy sessions twice a week, which looks like it'll be on Monday and Thursday mornings. They will be focusing on mostly Sensory (SPD) with a side of Feeding and Fine Motor skills (as mentioned before). They want to strengthen his pincer grip as well.

Physical Therapy:

Jaxson had his Physical Therapy consult last Tuesday and the therapist was pleased with what she saw. She mentioned that he was at age for gross motor skills but was concerned with his feet. She felt that his ankles were extremely relaxed or loose. She recommended we see an Orthopedist to be fitted for AFO (ankle foot orthosis) to correct his feet and hopefully help with his balance. She wants to see him once a week for a few months to work on core and leg strength.

Other Therapies/Referrals:

We had to post-pone his ENT appointment because the referral fell through the cracks some how. The office got the referral from our pediatrician but the insurance didn't. We finally received the boy's medical records from the Naval Hospital in Pensacola. The lady handling their records here will be putting their information on a disc for us. I do have most of Jaxson's referrals and genetic notes but I do not have the rest.

We are waiting to get in with the Neurologist, Sleep Center, Gastroenterologist, Ophthalmologist, and Genetics over in Raleigh.

Communication:

Jaxson has been babbling more and more. Mostly it sounds as if he's saying JJ's name, it's so sweet. He usually says it the most when JJ is at school, I know he misses him a lot during the day. He was so use to JJ being home with us but now he is gone from 7:30 to 4:30 (such a long day!). He also says something that sounds like "da-da," I guess this momma is chopped liver.

The Speech Therapist from CDSA (early steps) has me being more hands on with Jaxson as far as signs. However, when I ask him to do please, all done, and eat he does the sign for "more" or claps. They will be coming by on Friday next week to see how he's responding to me teaching him.

Overall, he's doing well!

Follow Us:

Twitter | Facebook | Pinterest | Instagram | GMail

Pumpkin Picking & Occupational Therapy Update

P U M P K I N . P I C K I N G

Hello friends!

This past weekend we were able to take the boys to Fun Time Farm & Corn Maze up in Beulaville, North Carolina! It was about a 30 minute drive, a little ways past Mike's Farm. We decided on taking them to the one out in Beulaville because it was more kid friendly. It was smaller but it had a little park, a couple sand boxes, small barn with animals the kids could look at, a maze that was about a mile long, rides for the kids, and they took you out to the fields to pick your pumpkin. The boys really enjoyed their time there.

Last year when we took the boys to a pumpkin patch in Pace, Florida, Jaxson couldn't do anything. He was a potato back then--that was prior to starting Physical Therapy. It was very nice to see both the boys playing in the sand box together and running around. Jaxson really enjoyed the Step 2 Fisher Price push toy, he couldn't get enough of it.

Top - 2017 / Bottom - 2018

O C C U P A T I O N A L . T H E R A P Y

Jaxson had his Occupational Therapy consultation today and he did really well. Zero anxiety, he's definitely come a long way with that. He use to freak out and get anxious, even with me in the room with him. Now when he sees a Tupperware box or bag, he knows that the therapist has a bunch of goodies for him in there. It's the cutest. 

The consult was about an hour and the therapist is a fellow USMC Spouse, we actually live on the same street! Hilarious. We went over Jaxson's history and diagnosis over the last 20 months and how he's doing. We were mostly concerned with his Sensory Processing Disorder. I've noticed that he's starting to bang his head more and more when he's upset, he'll get on all fours and slam his head down. I've seen him hit his head on a chair because he didn't get his way.. and he loves to slam his head on my left shoulder when he's trying to fall asleep. We're also concerned about how he LOVES to climb every single thing. 

The therapist recommended two, one hour sessions a week and if that is a little overwhelming for him we can drop it down to 30 or 45 minute sessions. Our main goal is to work on SPD and re-directing, some feeding because of texture he doesn't get enough nutrients, and lastly we will work on his pincer grip.

O T H E R . S P E C I A L T Y . C A R E

We have an appointment with the Duke ENT Pediatric office on the 13th of next month. The Naval Hospital in Pensacola finally mailed out the boy's records so we should hopefully get referrals in for Neurologist, Gastroenterology, Ophthalmology, and Genetics. We do have a Physical Therapy referral, waiting to get in with them and we are going through CDSA for in home Speech Therapy. 

So far so good! We've been here for almost a month and we are getting somewhere. Now to make an appointment to get our oldest enrolled into Kindergarten here. The school has been out since Hurricane Florence blew into town. They will resume on November 5th, I love my oldest but this momma needs a little break!

And as always, thank you for taking the time to read about our little Jaxson and how he's doing!

You can also find us at:

Twitter | Facebook | Pinterest | Instagram