Friday, July 6, 2018

Flashback Friday


Flashback Friday!

In honor of Flashback Friday AND Airway Disorder Awareness Day (July 10th).

Jaxson at one month old (left) having trouble breathing, eating, and gaining.

Jaxson at sixteen months old (right) eating anything and everything. Can drink 5 to 8 oz of milk in less than five minutes.. AND BREATHING EASY.

Please support Jaxson and his fellow Laryngomalacia Warriors with painting your nails light blue for Airway Disorder Awareness day on July 10th, 2018.


Show your support by tagging/sharing with us on Facebook or Instagram! Tag your photos with #AirwayDisorderDay2018 #LightBlueforLM

Thank you from Jaxson's Mom Jennie

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Friday, June 22, 2018

Funday Friday

Today is Funday Friday! 

We do this for you Jaxson!

We dressed up as Batmom and Ninjago in honor of Jaxson today for Rare Chromo week. Whenever someone told us how much they loved our costume we mentioned it was for Rare Chromosome Awareness week! 

Movie date

I also went to go see Jurassic World with my oldest for a little bit of a mommy and JJ date. I like to make it a point in spending time with just JJ since I give a lot of attention to Jaxson with everything going on. We definitely had fun! Even bought some ice cream afterwards.

Batmom and Ninjago 
FLEX

Next year I will ensure that I have a flyer or brochure of some kind to hand out for Funday Friday!

How did you show support on Funday Friday?



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